Patient Advocacy Connection
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Accelerated Cure Project for Multiple Sclerosis is a patient-founded non-profit organization dedicated to accelerating a cure for MS.
Aimed Alliance is an independent health policy advocacy organization.
AliveAndKickn’s mission is to improve the lives of individuals and families affected by Lynch syndrome and associated cancers.
Alliance for Aging Research is dedicated to accelerating the pace of scientific discoveries related to aging and health.
AfPA is a national network of physicians dedicated to ensuring patient access to approved therapies & appropriate clinical care.
The Alliance for Safe Biologic Medicines works to ensure patient safety is at the forefront of the biosimilars policy discussion.
The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected.
AARDA is the only national nonprofit focused on 100+ conditions in the autoimmune disease category.
ACS CAN is a national grassroots movement dedicated to eliminating cancer.
ACPA strives to represent the voice of real people with chronic pain.
The nation’s leading non-profit working on behalf of the 30 million Americans with kidney disease.
Our mission is to improve the lives of anal cancer patients & their families by improving care, prevention, and research for a cure.
We lead the fight for the arthritis community through life-changing information and resources.
Beyond Celiac is a patient advocacy organization dedicated to fighting for people with celiac disease and their families.
The Biden Cancer Initiative is working to advance real and meaningful improvements to the culture of cancer research and care.
BrightFocus funds exceptional scientific research worldwide to defeat Alzheimer’s disease, macular degeneration, and glaucoma.
CSC is a network of 175 locations that deliver more than $50 million in free support services to patients & families.
CancerCare is the leading national organization to help people manage the emotional, practical and financial challenges of cancer.
The nation’s leading family caregiver organization.
Facilitate engagement and mobilization of health advocacy leaders to promote patient-centered, quality, affordable health care for all.
We're dedicated to finding treatments and a cure for CMT, and improving the quality of life for everyone living with the disease.
CMTRF is focused solely on the delivery of treatments and cures for Charcot-Marie-Tooth (CMT).
Empowering a nation of allies to raise awareness of preventative measures and fund critical research.
The mission of the COPD Foundation is to prevent and cure COPD and to improve the lives of all those affected by COPD.
The Crohn's & Colitis Foundation is the largest private nonprofit funder of research in the field of inflammatory bowel diseases.
CureDuchenne is focused on funding scientific research to find a cure for Duchenne muscular dystrophy and assisting Duchenne patients.
Emily’s Entourage accelerates research for new treatments and a cure for nonsense mutations of Cystic Fibrosis.
The Epilepsy Foundation leads the fight to overcome the challenges of living with epilepsy and to accelerate therapies to find cures.
Science-based advocacy organization that works to bring lifesaving treatments to the 30 million Americans with rare diseases.
Driving collaboration among partners from every healthcare sector to speed life-saving treatments to patients.
The Global Colon Cancer Association is a group of Colorectal Cancer Patient organizations from across the globe.
Global Genes - our mission is to connect, empower and inspire the rare disease community.
Global Lyme Alliance is dedicated to conquering Lyme and other tick-borne diseases through research, education, and awareness.
A Charcot-Marie-Tooth advocacy & research organization.
The Huntington’s Disease Youth Organization's goal is to create and improve support for young people globally.
We are an international patients' alliance with over 270 member organizations in over 70 countries.
The JDRF T1D Fund is a venture philanthropy fund accelerating life-changing solutions to cure, prevent and treat type 1 diabetes (T1D).
The mission of LLS is to improve quality of life and ultimately cure leukemia, lymphoma, Hodgkin's disease, and myeloma.
Lipodystrophy United (LU) serves as a bridge between those living with lipodystrophy and all other stakeholders.
LUNGevity is the nation's leading lung cancer-focused nonprofit.
We strive to enhance the quality of life for those impacted by lupus and allied diseases through innovative programs.
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus.
March of Dimes fights for the health of all moms and babies. We're advocating for policies to protect them.
Mental Health America is the nation’s leading nonprofit dedicated to addressing the needs of those living with mental illness.
MDA is committed to transforming the lives of people with muscular dystrophy, ALS, and related neuromuscular diseases.
A global patient advocacy organization solely focused on myotonic dystrophy, has a mission is care and a cure for myotonic dystrophy.
The National Alliance for Caregiving is dedicated to advancing family caregiving through research, innovation, and advocacy.
NAMI is the nation’s largest grassroots mental health organization dedicated to building better lives of Americans affected by mental illness.
NDVLC’s passionate advocates combine decades of diabetes experience and leadership to advance patients-first policies.
National Health Council (NHC) is the only organization that brings together all segments of the health community.
The nation's leading nonprofit advocacy voice for patients' access to in-office infusion.
Fast Forward was established by the National Multiple Sclerosis Society to support the development of new therapies & tools for MS.
A patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
The nation's leading health organization dedicated solely to osteoporosis and bone health.
Saving lives by fighting tirelessly to prevent and cure ovarian cancer, and to improve the quality of life for survivors.
Driving efforts to cure psoriatic disease and improve the lives of those affected.
The mission of NYSCF is to cure the major diseases of our time through stem cell research.
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure.
Patients Rising stands up for patients and upholds their rights.
RetireSafe is a nationwide grassroots organization who advocates for preserving Medicare benefits.
Shatterproof is a national nonprofit organization dedicated to ending the devastation the disease of addiction causes families.
Sick Cells' mission is to elevate the voices of the sickle cell disease (SCD) community and their stories of resilience.
We advocate for people affected by sickle cell conditions, maximize the quality of life and raise public consciousness while advancing the search for a universal cure.
SWHR is a nonprofit thought leader dedicated to eliminating imbalances in health care for women through science, policy, and education.
A Community for Telomere Biology Disorders.
We find and fund innovative approaches to treat cancer.
The world’s largest nonprofit funder of Parkinson’s research, dedicated to accelerating a cure for Parkinson’s disease.
The Tourette Association of America works to make life better for all people affected by Tourette and Tic Disorders.
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC).
The U.S. Pain Foundation is the leading advocacy organization for people with pain.
UMDF is the leading global mitochondrial disease patient advocacy working together to advance diagnostics, treatments and cures.
United Spinal Association is the largest national non-profit organization dedicated to people living with spinal cord injuries and disorders.
YPR is a grassroots organization focused on peer-to-peer services for young people in, or seeking, recovery from substance use disorder.
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Advocacy
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Advocacy
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